National Links


Here are a number of links you may find useful:

Down’s Syndrome Association 

The Down’s Syndrome Association is the main UK charity covering all aspects of living successfully with Down’s Syndrome.

Down Syndrome Education International
This site is to help people with Down’s Syndrome achieve more in all areas of their development, by informing you of progress through research and education.

Down’s Heart Group
A charity offering support and information relating to heart conditions associated with Down’s Syndrome.

Down Syndrome Research Foundation
Detailed and researched based information about Down’s Syndrome.

Information For Parents
This is the Early Support Package for Down’s Syndrome, that was put together by Sure Start in association with the DSA.  Recommended reading for new parents.

Up on Downs Facebook Page
Click here to connect with Up on Downs on Facebook.

Special Friends
A free unique worldwide online community for people with learning / intellectual disabilities, their parents, carers, family members and professionals.


Videos and media links

“Life is a Celebration”

Here is a lovely video created by Jo Yarnell, about daugther Hannah.  Have the tissues ready – it will definitly make you smile and cry.

>Life is a celebration

“Down Syndrome: Attitudes and Expectations”

A YouTube video from a Dr Brian Skokto at Boston’s Children’s Hospital.  Dr Skokto is brother to a young woman with Down’s Syndrome.  He has focussed his research career on the condition.

“Why is your brother or sister with Down syndrome obsessed with movies?”

“My little sister (who happens to have Down’s Syndrome)”

If you have found a useful website or resource, why not tell us about it and we will put it up here as well.  Please send it to enquiries.nhdowns@yahoo.co.uk